Maintenance and Some Helpful Tools

Since about March, I've been feeling GOOD. Yep, I know, it's crazy! I have a handle on what food makes me feel best (even while touring). I've chilled out on consuming (but am not depriving myself completely of) alcohol. I am doing my best to sleep 8.5 hours a night, (10p bedtime is best for me but not consistent due to our tour schedule). I've added exercise back into my routine: Daily walking, light body weight workouts and yoga. I still do my best to stay updated on what's going on in the chronic illness / autoimmune wellness community, every little life hack can help.

When I started 3 years ago on the AIP protocol, if you had told me it would have taken this long for me to get to a point where I was feeling good, I may have never started. Temporary dietary changes felt like the end of the world. Every event was annoying because "I couldn't eat" something. Now that my food is dialed in and I've learned how to navigate social events I can say that food is the EASIEST part of this lifestyle, for me.

What I struggle with now is not overdoing it. I feel pretty good and "normal" most of the time now. So much so that I'll over schedule myself and end up knocking myself right back into feeling crappy. It takes me about 3-5 days to recover from a night lacking in sleep.  An early flight followed by late show, for instance and I'm right back to inflammation, headache, tired eyes, stress and anxiety until I can get back on track. It's hard to take advantage of wellness and not take it for granted.

I recently double booked myself for a late night birthday party followed by a friend's show. That afternoon I was feeling a bit restless and anxious so I got myself (read: forced self-care on myself) over to a yoga class. On my way home I called my best friend and talked out the situation. The reason I'm feeling so good is that I am prioritizing my health. I realized that the best decision for me was to cancel my plans. I reorganized my evening to fit with the routine of having an earlier night event and getting to bed by 10p. I need to use down time between tours to catch up on sleep and get back on "home schedule", to take advantage the times when I have control over my environment. 

Sleep, Food and Booze 

Similar to the project management triangle (see above), I can mess with one constraint at a time of: Sleep, Food or Booze and usually maintain a state of wellness.

None of the constraints can be altered without affecting the other.  Each of the points can be a stressor on the body.

  • If I'm not getting enough sleep, my food and booze intake has to be perfectly on point. (That means less than 20g of carbs, no booze and adequate fat intake, for me.)
  •  If I'm being more adventurous with my food, say having some handmade nixtamalization tortillas, then I need to not be overtired and I can't overdo it with alcohol.
  •  If I'm going to have more than 2 drinks, I need to make sure my food is on point and that I'm going to sleep enough to chill out my system.

It's all about balance. (Stress Management is a constant factor and has to be considered at all times before indulging in any of the above three constraints.) 

 

 Tools I couldn't live without 🙌

Podcasts:

I follow some health centered / bio-hacking podcasts that often have a lot of information i'm familiar with but usually offer a great tidbits that I can hold as a reminder or something to help keep me motivated and on track. 

Dr. Ruscio Radio - This is my doctor, he's frequently commenting on and sharing current information having to do with gut health/ auto immunity / SIBO and thyroid issues. He also interviews other doctors about their research and writings. This has helped me save so much money as I don't need to call him for an appointment if my questions are answered by what he's giving away for free. 

AutoImmune Wellness Podcast - Mickey Trescott and Angie Alt of AutoImmuneWellness.com just wrote a new book on thriving with chronic illness and autoimmune conditions. Even though I'm at the last stage in this 16 episode podcast, I still found each episode really helpful. It's comforting for me to know and be reminded that there are other people out there also struggling with the symptoms associated with chronic illness. I was especially relieved to hear that what I still struggle with, (stress management, getting enough sleep and prioritizing my health routine) is what other people also commonly struggle with. Mickey mentions this in the last episode of the podcast and I felt so relieved. That these "gurus" of autoimmune conditions are struggling with the same things. She talks about how it's constantly a challenge to stay in balance. She, like me, gets greedy when feeling good and inevitably "over does it". 

Other podcasts I recommend following for new info, recipes and life tweaks: 

Revolution health radio, Ben Greenfield Fitness, and websites like SCDlifestyle.com, ThePaleoMom.com and NomNomPaleo.com

 

Other tools: 

Support system: I surround myself with people who support my health habits. I plan with friends who are happy to have a dinner in, or let me have a say in where we eat. (Inevitably, your self care will make some people defensive. Do your best to make a space for them to exist in a way that doesn't knock you off track.) I find this support invaluable both in  moments of weakness and the rest of the time. It's just good to have people around that support you!

Planning: I bring food with me everywhere! I eat before I leave the house and I make sure there is something I can eat with me for at least one or two meals in addition. That way I won't get caught off guard (life happens!) and make poor (for me) decisions. I also try to keep my food exciting and interesting by switching up what I’m making so I don’t stray out of boredom.

 

OMG, IBD? (and my experience with the Elemental Diet)

I wrote in February how I'd done 9 rounds of Chelation, for Mercury and Lead toxicity. I've since stopped getting IV treatments and (at the suggestion of my budget conscious Doctor) am currently taking supplements to continue chelating in a less expensive, yet effective way. 

The plan was to go back on the diet that had made me feel best in the past. My experience had shown that would be the Autoimmune Paleo Protocol, combined with a Low FODMAP diet. However, this time around I remained symptomatic. I was still bloated after 2 weeks on that diet (strange, for me). I was also still very tired most of the time, something that usually improves on this diet. The one improvement I DID (very happily) notice that improved after chelation was my skin! My acne has really diminished from 8 breakouts a month to maybe 1 or two spots.

I had spoken to Dr. Ruscio and Dr. Lalezar about the diet not bringing about similar results as it had in the past. Dr. Lalezar suggested we re-test for SIBO as there is a chance that it had come back. She also tested me for leaky gut, (an Array 2 for you test savvy readers) to get a sense of how permeable my gut is right now. Dr. Ruscio suggested, prior to me going back on AIP + Low FODMAP, that one option would be going on the elemental diet (an easily absorbable liquid diet) for a time to see if giving my guts a rest on breaking food down would improve my tolerance.

The other option would be to treat me for non-clinical IBD. This is a potential diagnosis for me. That I have an IBD (likely Crohn's due to my presentation of ulcers) but it doesn't present normally. This could be why the Gastrointestinal MD (Dr. Shaye) was hesitant to diagnose me with Crohn's after seeing my blood panel but thought it was likely that I had Crohn's after seeing my colonoscopy. Treatment for that would include a natural protocol of anti-inflammatory supplements/tinctures and making sure that I'm on the right diet for an IBD. (Dr. Ruscio is a "food first" doctor" he believes that for any of the natural/holistic methods of healing to work, you have to dial in food right for YOU first, then treat. I, clearly, am also very much on this train.)

 

My (Semi) Elemental Diet Experience

Of my own volition (because I hate waiting for doctor's for results and am trying to minimize costs) I decided to first try the elemental diet. I am familiar with three options for this diet: Vivonex Plus, Absorb Plus (which is a semi-elemental diet) and Homemade. The difference between elemental and semi elemental is protein and fat content and the size of the molecules you are absorbing for nutrients. Unsurprisingly, the larger the molecules get the more flavor improves. (I did Absorb Plus because apparently Vivonex tastes like the glue on a postage stamp (is made by Nestle, not the greatest track record for providing us with whole foods) and the homemade one you have to take like a shot because it tastes so bad.) For 6 days I drank a shake that tasted like the milk after a bowl of Kix cereal, not terrible. I remained bloated during the diet but that's not uncommon. It's still giving your guts a rest, even if that occurs. I had some reservations about it as the protein in the shake is from Whey and I don't do dairy on a regular basis. However, I don't have an allergy and despite any symptoms it would still be improving inflammation by reducing digestive work. (See the FAQs here about the soy and whey in the product, they calmed my fears.) This diet can also be used to effectively get rid of SIBO, but you have to take it for weeks at a time. I previously successfully treated my SIBO with anti-microbials, prescribed by Dr. Ruscio.

Things I noticed while doing the Absorb Plus semi-elemental diet:

  • I wasn't hungry but I would get very hungry if i didn't continually sip my shake. Dr. Ruscio's suggestion for me was to sip slowly throughout the day rather than DRINK a shake at mealtimes. This would help keep my blood sugar from spiking since I don't seem to do well with sugars or carbohydrates. This was a personal precaution but I think i could have probably taken it normally and be fine. I didn't have a problem with energy or anger the whole week (sometimes an issue with me and carbs!)
  • I did find some Casein Curds in my stool. I thought perhaps I'd swallowed a chunk of undissolved powder (that's what it looked like) but after a couple of these appearing and some intense internet research, I found that it's actually "casein coagula." I haven't been able to gather any information on why or how your body makes these little thumb-tip sized curds but it seems clear to me that my body was just trying to protect itself from the dairy and expel it. I noticed this happened again after having a raw milk latte at Mission Heirloom for my Birthday. I avoid dairy on a regular basis so this was a new experience and after I wasn't alarmed by it any more, I was more interested in the function. I can't wait to hear what Dr. Ruscio and Dr. Lalezar say about it. I'd never seen one before, and within this diet and one latte, I'd seen 3 over the course of a week.
  • I didn't weigh myself but I'm sure i lost a little weight. My pants felt less tight and the idea was to reduce bloating. I did feel like overall the diet was a good "break" for my intestines, to reduce inflammation and I was able to go back to AIP + Low Fodmap feeling like it was more tolerable and with less bloating.
  • I suspect that the treatment for chelation was very agitating for my system. I was symptomatic the entire time and was not strict about diet (more paleo than AIP or low FODMAP). This elemental diet was a good way for me to "reset" my system. Also, if my stool test comes back positive for SIBO again, it will also have been a good jump start to getting rid of it.

IBD info...

My miracle anti inflammation drink. Homemade bone broth and juiced turmeric.

My miracle anti inflammation drink. Homemade bone broth and juiced turmeric.

My follow up with Dr. Lalezar for my SIBO and Array 2 results are in later this month. In the meantime, I had the fortune of coming across this podcast that Dr. Ruscio did on IBD! In it he speaks with Dr. Steven Sandberg-Lewis about his approach for IBD: supplements and diet etc. They discussed that the most useful diet for IBD, in their opinions, is the Specific Carbohydrate Diet (which I've mentioned here) combined with a Low FODMAP diet. They also talked about some supplements/nutrients that I take occasionally but not regularly, like curcumin (the anti-inflammatory component found in  turmeric root).

I've been doing AIP (cross referenced with SCD, GAPS, low FODMAP) for the past 2.5 years. So scaling back to just SCD and Low FODMAP would mean re-introducing some foods that I had an instinct weren't causing an issue for me but I wasn't quite sure and was too nervous to truly re-introduce them. I did not do what would have been the most thorough method, which would have been to try one food for 3 days to see how I react. I just jumped in. 

It's important to mention that during Chelation I was not super strict. Since i was so symptomatic from the treatment and chemicals floating around, I ate more liberally, fodmaps and some non-AIP friendly foods that I thought "were fine". I also think, that my wishful thinking about eventually being paleo in the future (which is so much easier than any of these diets, in my opinion) that I wasn't seriously considering FODMAPS my main issue. I think now, that I was wrong.

Last week, I converted over to SCD combined with Low FODMAP, the IBD specific diet. The symptoms of IBD really resonate with my experience and it seems like if that is the real underlying issue (now that mercury/lead are removed as toxins) then this should be the right track. I also had experiential evidence that tomatoes and spices had never really caused a reaction that I'd been aware of. So this was worth a shot.

Within two days, I wasn't completely not bloated but I definitely felt a difference. My pants felt lighter/less restricted, even after eating. My exhaustion didn't disappear but it receded (by about 2hrs less sleep). It seems like, FODMAPS and really focusing on fermentation in my gut could be the key to healing my leaky gut and also figuring out the "right for me" lifestyle and diet. I also noticed a new symptom that I hadn't before, either because it was lumped in with general un-wellness or I was confusing it with my monthly cycle. Intestinal cramping is happening to me if i have FODMAPS, like onions in my Chipotle Guacamole for instance (which, if you know me, is a TRAGIC symptom to discover). It feels like period cramps, despite not being on my period.

Over the past week I've been able to hone in on some things that are true for me, right now:

  • I cannot have any FODMAPs, even Avocado
  • I must stay strict on SCD (no starches of any kind that aren't "legal")
  • I can tolerate tomatoes
  • I can have (approved) drinks ONE night a week, two is pushing it, three is fully symptomatic.
  • I can only have dry farm wines right now, if at all.
  • I can have tequila or potato/corn vodka ONLY as liquour
  • Eggs, on occasion may be fine. Not pushing it.
  • I can have ONE glass of Kombucha a day
  • I can have coffee if I dilute it but 1 or 2 a day max
  • I definitely still have parasites. Doing another cleanse in april. Organic Olivia's is out now!

I do think I mentally blocked fermentation and FODMAPS as being the true possible culprit. For me, it's way easier to just eat tons of vegetables and proteins rather than a Low FODMAP diet. SCD already doesn't allow starches: grain is out, potatoes are out, sweet potatoes are out. Low FODMAP cuts out a ton of fruits and vegetables. This diet is very similar to what I'd already been doing but I can add back in things like: Eggs! Seed Spices! Some Nightshades! In hindsight, my GI doc, prior to my colonoscopy, mentioned they tried to get patients with Crohn's to go on a low FODMAP diet but it's hard for people to stick to. The podcast I linked to above also talks a lot about the science behind the digestive system, IBDs and FODMAPS/fermentable prone foods. Like AIP, this doesn't have to be forever! It can be a tool to help heal up the inflammation/ulcers and then you can re-test (by careful introduction), if over time you can tolerate more FODMAPS.

AIP, SCD, Low FODMAP, GAPS and Paleo friendly dinner: Kabocha Squash, Duck, Wilted Chard.

AIP, SCD, Low FODMAP, GAPS and Paleo friendly dinner: Kabocha Squash, Duck, Wilted Chard.

So, with renewed vigor (and a little bit of disappointment about avocados and Chipotle). I am committing to SCD and low FODMAP. It's my way of doing field research before paying someone to tell me what to try next. Beyond that, I'll circle back with my Docs (and possibly may even re visit my GI doc to check in) to see about how to move forward with treatment. 

UPDATE 3/30/16

I spoke with Dr. Ruscio today and followed up with Dr. Lalezar this past Monday. The plan going forward is to focus on IBD therapy. That will include a specific probiotic therapy protocol, changing up the digestive enzymes that I take with each meal, experimenting with a semi-elemental diet from time to time (see Absorb Plus, above) and some other Crohn's/ IBD support supplements. In a month we'll check in to see how it's going. I'm also to experiment with a low fiber diet and see how I fare. Some people with IBDs have a hard time with insoluble fiber (see the podcast mentioned earlier for more info). We talked about FMT being a sort of "last resort" but it exists as an option and has been proven to help many people with Inflammatory Bowel Diseases. That's a little further down the road at this point.

It's Not Over Yet...

We just got back from tour yesterday evening. I had a follow up with Dr. Lalezar this morning to see if my metals were completely chelated (Kee-lated) after 9 chelations and 3 tox screens. I followed up with Dr. Ruscio before I left to fill him in on the Parasites/Metal state of affairs.

The Bad News

The tricky part about chelation is that when they test you for metals the numbers aren't 100% accurate. Mercury stores in your tissue and lead in your bones, so to get it out they give you a challenge test. As you chelate, you pull more and more out (hopefully, until it's gone.) As I've tested and re tested and chelated my numbers have gone down. However, what it's looking like is that the numbers were still higher than originally anticipated. I still have a 5.9 in Lead (up a tenth of a point from the last test) and 7.1 in Mercury (up a full point from last test). 

Dr. Lalezar said that she'd be comfortable with me stopping IV chelation at this point if I felt better. The issue is that even back on AIP + Low FODMAP i'm still symptomatic. This is confusing and frustrating to say the least. I'm doing everything that I KNOW WORKS... and it's not working this time.

The Good News

I don't have to continue IV chelation. I'm going to use supplements like N-Acetyl Cystine, Chlorella and foods like Cilantro to naturally detox the rest of the way. 

The Part where I could Cry with Frustration

I haven't really gone into it yet but THIS SHIT IS SO EXPENSIVE. I plan on eventually detailing what last year cost me because a lot of practitioners don't take insurance, or if they do the treatments often aren't covered. It's important for people starting on this journey to be informed about the cost. So, while we've made progress since 2014, every move I make now puts me in the hole. (Being in a band isn't the most lucrative job decision I've ever made, even if it was the right choice for me.) Chelation is $1300 for every round of 5 treatments, each tox screen to see your levels is $350, you get the idea...

Beyond price, it's utterly confounding that AIP and Low FODMAP isn't enough to reset my system any more. I was still bloated and exhausted this past tour. When I spoke to Dr. Ruscio prior to leaving he agreed that going back on the diet hard core was the best plan and we'd check in in 30 days. After that, if I was still having trouble reintroducing foods we had two routes to try. We could do an Inflammatory Bowel Disease protocol of supplements with probiotic therapy. (Not a bad idea since it's possible that i have an IBD like Crohn's but i'm not "deteriorated enough" to test positive for it.) Or, we could try an elemental diet, which is a liquid diet of absorbable nutrients that gives your guts a break from breaking anything down for a period of time.

With AIP+ not working, I'm ready to try anything. Dr. Lalezar ordered a leaky gut test to see if the antibodies for broken gut junctions are present. She also ordered a stool test so we can make the next move with more information. Perhaps there's some persistent SIBO, is one of her concerns. I've ordered one jar of the elemental diet "absorb plus". It's made for people like me that can't tolerate ANY foods. I also know people who've been directed to consume this to help starve out their SIBO as well as heal their digestive tract. One friend stated that she felt like her old self again while on it because it completely eliminated all the symptoms food and toxic byproducts were causing in her system.

The worst thing that will happen is that i try this liquid diet for a couple days and it doesn't agree with me and I go back to AIP+. The best thing is that it DOES agree with me and I get a brief moment of mental and physical break from all this. oh, and food too... (side note: it's $61.50 a jar and each jar has just over two days worth of food in it. So, that's the hold up. Here's hoping It works but I only use it for a bit of time.)

Current Mood

Current Mood

 

Today is a challenge. I'm exhausted (physically from being on the road and mentally from still not having any answers). Brahm is rightly so keeping his distance as I'm not the best version of myself today. I'm still hopeful. I hear about people like Meghan Telpner, Mickey Trescott and Chris Kresser who've had "incurable" or "undiagnosable" ailments that have completely turned their lives around. I look forward to being the person most people see when i'm "putting it on" outside of my home, all the time. 

 

Why I'd recommend an Elimination Diet to anyone.

I get a lot of eye rolls when i talk about food. Most of the time because my symptoms could be explained by almost anything. If these were occasional or one off reactions i'd totally get that. I also get that most people probably don't keep stock of how they feel throughout the day (meticulously or at all). Reasons why I'd recommend someone try an elimination diet: headaches, allergies, asthma, undiagnosed or unexplained anything from your Doctor. Acne if you're not 14, acne if you are 14, weight gain, weight loss, fatigue, moodiness, poor memory, if you've never done one before, if you have done one before, insomnia, anxiety, depression, joint pain, gut pain, heartburn, teeth grinding/clenching, gas, bloating, burping, diarrhea, constipation, gallbladder issues. You get the point, if you have an "issue" it's worth examining how your diet may be a contributing factor. There is no gold standard test for food allergies or intolerances. Because our bodies are so unique to us, the most effective course of action currently, is doing an elimination diet. 

Of course I do believe that I'm a product of my own life. My experiences, environments, diet, lifestyle, friends, community, activity level and general life decisions have all shaped who I am. Of course I've been to therapy. Of course I've seen General Practitioners for a bunch of the symptoms I've experienced (as you may have read). The point is, if it's not getting better and you want it to, my FIRST suggestion to you is going to be: try an elimination diet. 

Eliminate food as the possible source of your ailment.

That is my suggestion. It is far too easy to have eaten wheat and dairy and sugar (to name some of the main offenders) and become accustomed to how it feels in your system. You can be symptomatic and not know it or have NO symptoms currently and still have a possible issue. Admittedly, I'm one who had symptoms of intolerances to these foods and never really felt the effects until i went off them and then reintroduced them. These diets are not just for allergies/intolerances. The food you eat influences your micro biome and diversity of that bacteria is instrumental to your health. Eating certain foods can kill off the variety of bacteria in your gut which can lead to health problems as simple as being more susceptible to colds or as complicated as allergic reactions to food. This could be step one of merely living a healthier lifestyle catered to your specific needs.

I was listening to Dr. Ruscio's podcast yesterday. Mickey Trescott (the author of the cook book I have and used before I went low FODMAP) was the guest. She made a great point about AIP (and this applies to elimination diets in general): It's a tool.

"No diet is going to fit one person for the rest of their life".

Maybe what you ate 5 years ago doesn't agree with you now. Your body is constantly in flux. Stress, sleep, illness, all of that can play a part in what you can or can't handle digestively. And, to make it more annoying and confusing (because believe me it is both) you can't even go by what everyone says the symptoms are. You have to figure out how that food makes YOU feel and listen to YOUR body's reaction.

I, for one, do not present "normally" when it comes to a lot of the issues Ive been faced with. Acupuncturists, chiropractic and "regular" (or M.D.) doctors have all had a difficult time diagnosing what's up with me because of this. Knowing what makes you feel your best and if you're not quite there yet, is what I've found to be the key in prioritizing my health. The first step in really knowing what affects you is eliminating possible offenders and then reintroducing them methodically, so you can rule them out as a culprit. Regardless of the outcome, you will gain some control in your own day to day energy, digestion and mood.

I can practically promise you that. 

the good news?

If I can do this, LITERALLY ANYONE CAN.

I am a junk food addict. I love McDonalds, I love Dominos. I've eaten my fair share of each of them and many more foods like them. I think sometimes it just comes to a point where you're either really ready to feel better, or at the time, perhaps it's not worth it to you. I had to wait until I was ready, my will power wasn't enough otherwise. Now if I eat Domino's, I not only get bloated but i have almost immediate neurological effects. Depression, anxiety, physical heart palpitations, insomnia, nightmares, my body is very clear about not wanting this food. However, those reactions weren't clear until i cut out all those ingredients and then reintroduced them. My picture still isn't complete of what's healthful for me and what isn't, but for now I do have a good idea what to stay away from. Once I'm finished with chelation, i'm going back to AIP low FODMAP (strictly) and seeing if I can heal my leaky gut enough to reintroduce more FODMAPs. (I'm so symptomatic in treatment, I eat what I know makes me feel good 80% of the time but I've also allowed myself some leniency. It's a balance.)

There are a bunch of diets one can try. If a certain diet doesn't cure your symptoms, unfortunately that doesn't mean that food is not a factor. It could mean that. However, it could also mean you just hadn't removed that food item or group yet. That was the case for me with Kale and FODMAPS. This may mean trying more than one diet. It may mean committing a little longer than you originally anticipated.

Elimination Diets I can suggest:

SCD - great one to try for suspected leaky gut, and IBDs (Celiac, Ulcerative Colitis, Crohn's)

GAPS - developed from the SCD, this diet is tailored towards gut flora health and healing leaky gut. (In my opinion, if you go either of these routes, you may as well look at the lists between the two and decide where you might want to start.

The Paleo Cure - this book by Chris Kresser is extremely informative about how your body absorbs nutrients and is not preachy. This is a good diet for anyone who wants to feel better overall but doesn't necessarily think they have any "issues". It removes the main offenders but isn't too intense in my opinion. You can also check out Robb Wolf's website here.

AIP - if the diets above aren't producing the results you desire. Or if you feel like going balls to the wall and "getting it over with" this diet is the one for you. It removes more food groups comprehensively than the Paleo diet, such as nightshades, seeds, nuts and the spices that fall under those categories.

Low FODMAP - (stands for Fermentable Oligo-Di-Monosaccharides and Polyols) a good reference to start if you have IBS, Crohn's or other IBDs. FODMAPs are short chain carbohydrates that can ferment if undigested in your gut. The cool yet tricky thing about FODMAPs is that it's not a black and white situation. It is dependent on the amount of the food taht you eat. Perhaps 1c of broccoli is OK for you but any more than that causes a host of symptoms. I tacked this on to AIP because they were clearly an issue for me, I was super uncomfortable and swollen from the vegetables and fruits on this list. I hope once my gut heals I can add them in, I MISS MOST VEGETABLES!

Here are some AIP friendly meals courtesy of Mickey Trescott's Instagram, not too shabby.

The hard stuff (my story part 4)

Read Part 1, Part 2 and Part 3

Maybe Food is not the (only) Answer?

After my success with AIP and Low FODMAP i was sure that with proper nutrition, I could save the world. On this journey, I have found how very important it is to be your own health advocate. All doctors take different approaches, come to the table with a different set of tools, want you to take different supplements. Its up to you to do research on your own, make a note of how you feel, stick to the program (or not) to make progress. 

I still believe that food is medicine. There are plenty of people out there who've gone this far down the rabbit hole and are living much happier, healthier lives. There are people who feel that way from just switching to all Organic and non-GMO food! My story is just a little more involved. I still believe in food being the foundation, for everyone. It's just about finding what makes you feel great, and eating that. Beyond that, sometimes we all need a little help.

I made a hashtag while traveling with the band #howdoyoueatontheroad which is what people ask me when they find out I'm doing AIP low FODMAP, here's some examples, lots of food bags in the van and stops at the grocery store!

Functional Medicine

I met up with Dr. Ruscio in September 2014. He's a functional medicine doctor located in Walnut Creek, CA. I told him all my prior symptoms, my family history of IBDs (Celiac, IBS, Diverticulitis etc.), my current symptoms, the elimination diets I'd tried, what worked, what didn't. He ran the gamut of blood tests. (my labs are up on another post for reference). We did stool tests, everything. I wanted to check for lyme disease, epstein barr, parasites, ANYTHING that could be holding me back from feeling 100%.

SIBO

My tests came back to show that I had SIBO, small intestinal bacterial overgrowth, and Candida. Over the next two months, we treated the SIBO with anti-microbials for two months. You can also treat SIBO with antibiotics. I'd been trying hard to rebuild my gut microbiome and didn't want anything else wiping it out so we went this route. My symptoms were awful. Month one, it felt like I was off AIP (despite sticking to my protocol): Bloating, irritation, fatigue, it was a super bummer. Month two seemed to have all the mental symptoms but none of the physical. Bloating went away but I was super anxious and depressed and moody for that month. Once it was gone, I was back to square one. I felt just as great with NO SIBO as i did WITH SIBO. Still on the same diet, still at 80%.

Dr. Ruscio and I followed up. We re-tested for SIBO twice just to make sure it was gone. I wanted to get scoped. I thought that the rest of the symptoms I was having were linked to an IBD, my tests showed I have markers for Crohn's Disease, gut inflammation and low b12. My family has a history of IBD issues. I made an appointment the next day to meet a gastroenterologist. We scheduled an endoscopy and colonoscopy as soon as possible.

Crohn's?

The findings from the scope were that I had a hiatal hernia and ulcers in my intestines, mostly around my ileocecal valve (the junction between large and small intestines.) The hypothesis was Crohn's Disease. It would have made sense that AIP and Low FODMAP improved my condition as Crohn's is an auto immune disease, mostly manageable with diet. 

They wanted to do a capsule test and standard GI doc blood tests, to be sure. I swallowed a pill shaped camera that would take pictures as it traveled through my guts, to see what was going on in the stomach and small intestines, where the colonoscopy and endoscopy don't reach. I'm skipping a chunk of time here but basically the capsule test showed that that was all they saw. They also did a "gold standard" blood test for Celiac, and an IBD panel. They don't think that I have Crohn's definitively, based on that blood test, despite my genetic markers. They did want to re-test for SIBO again but I chose not to at that time.

In around July of 2015, I worked with a nutritionist briefly who has some really great information on digestion, here. I think this video series (which costs 50 cents) is SO SUPER AMAZING! Learn how your body actually breaks down food, the dangers of antacids and how important HCL and bile are to that process. It would be instrumental in improving your own digestion and it's basically free!

Parasites

I put in a consultation call to Megan Rand over at Ginger Newtrition. I found her through a skin care company i LOVE called Fat Face Skincare. Megan and I went over all the steps I'd taken so far with gut, diet, stress etc. and talked about how all my blood tests were coming back relatively "normal" yet i felt 80% and looked awful. I asked her if anything seemed like it was glaringly obvious, in terms of an option I hadn't tried yet. She asked if I'd done a parasite cleanse. 85% of her clients that are struggling with similar issues, passed large parasites on a cleanse. I followed the link she sent me HERE. I also checked in with Will (see nutritionist paragraph above) to see if he'd heard about it. He sent me to this site. 

I followed Dr. Hulda Clark's parasite cleanse and passed eggs, flukes, roundworms, pieces of worms. It was so crazy (and gross, but still cool). I ended up doing the program twice to be sure I'd gotten them all out. KEEP IN MIND THAT MY PRIOR LAB WORK SHOWED NO SIGNS OF PARASITES OR EGGS, AND THEY HID DURING MY COLONOSCOPY AND CAPSULE TEST. They burrow, it's gross.

No part of my condition improved after the cleanse but I was glad that however the parasites had been allowed to thrive in my body, I'd gotten rid of them. Being parasite-less frees up the energy my body to run more efficiently and work on healing rather than supporting other organisms. I suggest this for anyone who has any leaky gut, digestion, skin or auto immune symptoms. If you are experiencing those, your body has probably been compromised enough to allow them to grow from egg stage to adult stage.

Heavy Metal Toxicity

Fall of 2015 I saw another functional medicine doctor, Dr. Lalezar, located in Los Angeles.  Through her standard round of testing I found out that I have unsafe levels of mercury and lead in my system. We assume they were from amalgam fillings that I'd had since childhood. (I don't eat a lot of fish in general, or larger, mercury heavy fish. Though I could have gotten some from eating sushi occasionally.) Lead is also found in some municipal pipe junctions (via tap water, it can get into you). Her protocol is remove toxins, then work on rebuilding and healing the body. I'd been working on healing and re building with food but didn't know that I'd had this metal in me, preventing the healing. (I still check in with Dr. Ruscio, I think it's important to keep everyone in the loop so we can all learn from different experiences. Everyone presents differently, there's no right way to treat someone.)

I'm in the process now of going through chelation, where they pull the metal out of your body. There are varying schools of thought on how to do this (oral, IV). It can be dangerous so you need to make sure your body is ready to go through it and that if you do have any metal fillings left, that you have them removed first. (I suggest finding a holistic dentist as removing amalgams must be done very carefully and specifically.)

It turns out that after 5 rounds of chelation and a re-test for levels, they higher than we originally thought. I am doing 2 more of DMPS IV chelation for mercury and 2 rounds of Calcium-EDTA IV for lead. She does this in conjunction with Glutathione which is an antioxidant that helps your body pass the metal quicker into your urine so as not to re-toxify you during chelation. It is exhausting, just like the SIBO treatment. I've had physical symptoms: bloating, fatigue, mood swings, loose stool, irritability during the whole process.  My hope is that metal toxicity could be the final key in unlocking the final part of my story. It causes the immune system to be weak, it causes leaky gut, one of the main side effects of mercury toxicity is fatigue and brain fog. 

Here's some information on Chelation:

Ben Greenfield's Podcast on Heavy Metals

Crucial Dos and Dont's about Heavy Metal Detox

I'll post again as I have an update!

For now I'm scheduled to chelate through Feb 18 when we retest to see where I'm at.

Skin Update

My skin examples, ON AIP, good days and bad.

It seems to break out just before ovulation. It's not yet consistent. It's gotten better with the chelation. It's seemed to start in my cheeks, heal there as i changed my diet. It inflames if i have any offending foods (sometimes by accident). It's sort of traveled down my face into my neck as I keep progressing step by step to feeling better.

Update 6/18/16
See my Road to Recovery post here!